We have sat down more than once and tried to write this letter. At Thanksgiving, it seemed fitting because we are so grateful to you, but the words wouldn’t come out right. At Christmas, we acknowledged the gift you gave to us, but again, trying to process what to say has been challenging. But now…today seems fitting because we got notice that C can go home soon. We are no longer looking back. Rather, we look forward to a new year and a new life in 2016.
We look forward to:
- Seeing C come home from the city our hospital is in and we can all be together again. It’s been over 6 months since we have all 4 lived in one place.
- Our children playing and just being together like normal siblings, for the very first time.
- Watching C’s immune system start to function on it’s own
- Gradually taking away more and more meds as C recovers
- A year where we get to celebrate each holiday out of a hospital with our family and friends
- Family cook outs on the driveway and watching both our kids ride their bikes
- A family vacation to the mountains, in the fall. We want to camp, climb, explore, collect rocks and go fishing.
- Seeing C start preschool in the fall and get to socialize. He loves people and always longs to play with other children he sees from a distance.
- Having a “Be the Match” drive on C’s one-year anniversary to find more donor’s for those who need BMT.
- Teaching C how to hit a t-ball
Beyond this year, there are so many things C will get to do in life because you so selflessly gave. Because of you, we have a new, fully energetic son. He is %100 boy! He loves knocking over towers, throwing balls, growling like a tiger and wrestling. He also has a tender side. He loves to give fist bumps to everyone. He likes to sing, play the piano (or bang on it J) and dance. His favorite things are Elmo, whom he calls “La La,” Minnie Mouse, the slide in our backyard, and of course, his iPad. It’s been pure joy, watching him discover the world around him and develop a great personality. None of this would be possible without you. We know that you had to take time to get blood test, fill out paper work and to have your bone marrow removed. Thank you. I’m sure it was painful too and you did it anyway. Thank you. Who knows when you registered to be a donor or why…maybe you even forgot about it until you got the call. I know that you acted quickly, because C needed a donor fast after his first transplant failed. Thank you.
When 2015 began, C was in the hospital where he had been for just under four weeks. The doctors had no idea what was wrong with him. Little did we know that the entire year would be spent on a journey to save our son. He is special. In fact, we lost a baby just five months prior to getting pregnant with C. That taught us that sometimes you have to experience great loss before a great gain. We believe this to be true about this past year. We have felt so much grief, but we have also felt much comfort from our community, doctors, nurses and strangers. We have lost what feels like a lot of precious time, yet we have gained a lifetime for our son and hopefully a new friend in you.
We would love to know more about you if you would like to respond. Please feel free to ask any questions, about anything. We are an “open book” per say and would love to share this story together!
Kenny and Ashlee Osborn