We are more than a week since Charlie's transplant and all things considered he's really doing fantastic! That's not to say that we haven't had a few bumps in the road. Sunday (day +5) was a real challenge for Charlie. He ran a fever for the first time during this entire process. The fever threshold that they use on the BMT unit is 100.4 °F. Since he crossed that line they immediately took blood cultures from his central line, started him on antibiotics and began testing for viruses. We did discover that he has a bacterial infection in his blood, but it's not a major issue because the pathogen isn't a dangerous one. He was pretty sick Sunday, but since then it's been a different story. :)
Monday, Tuesday and today have all been really great days for Charlie. He's had plenty of energy. He doesn't love staying in his bed all day so, as you'll see in the pics below, we get creative and make it as much fun for him as we can.
We did have two major milestones this week with Charlie. The first is below:
We knew that this was coming, but it's still hard to see when the test comes through. This breaks out the different types of cells in Charlie's white blood count. The middle column shows the standard values and the column on the right side shows Charlie's values - all zeros. While this means that Charlie's immune system is non existent it also means that the new cells won't have anything stoping them from engrafting.
Then there's this:
We also knew that Charlie's hair was going to come out. Knowing it cognitively and waking up to his pillow being covered in hair are still very different. It's not been as emotional as we thought it would be but it still represents a drastic change for him. He's going to be a really cute bald kid though!
What I love about Charlie - and this is a growth area for me - is that he's not phased by any of this. He's still fully engaged in life. He's banging around and climbing all over his crib. He still laughs and plays and has a great time. I know in my own life things conditions have to be perfect for me to be happy. Not for Charlie. He's able to find joy even when things are hard. Below you'll find a number of pictures where he's having fun and just enjoying life - trapped in a 200 sq ft room.